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Dec 08

From Raun, the Original Son-Rise kid...GREAT stuff!

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By Raun K. Kaufman
Director of Global Education
Autism Treatment Center of America

Ah, the holidays. Special meals. Special family gatherings. And, of course, our special children! Oftentimes, we just barrel through the holidays, hoping for the best - but not taking the time and focus to make sure this celebratory time really feels like a celebration for us and for our children on the Autism Spectrum. Most of us find ourselves unwitting participants in at least one of the 10 Holiday Hiccups.

We know we're in a hiccup when our special child is having more meltdowns. When our extended family members appear uncomfortable or at a loss. Or when we, ourselves, feel stressed out or burned out.

We may blame the hectic holidays, but, in reality, it's not the holidays causing the difficulty; it's the pitfalls we mistakenly step in. This is great news because it means that our challenges are preventable!

Take a look below at the 10 Holiday Hiccups - and How to Prevent Them. You'll be thanking yourself from now till New Year's!

Stopping Your Child From Isming ("Stimming")
Given the commotion and routine-change of the holidays, this is the most important time for our children to be allowed to self-regulate and cope with their environment. We know that isming is crucially important to our children and their nervous systems. Ideally, of course, we would join our children in their isms. But even during the times over the holidays when we aren't able to do this, we can still let our children do their thing. When we do this, everybody wins!

Feeding Your Child "Crash & Burn" Foods
Yes, it's the holidays. Sugary, wheat-filled, dairy-crazy foods abound. It can be tempting to allow our children to partake in this glorious cornucopia. We might think it will be easier to just let them have it this once. Let me assure you: it will not be easier! There are a host of foods that we know are not going to be processed well by our children. Yes, the first few minutes of allowing them to eat whatever is around might seem easier. But a few minutes later…it's crash & burn time. The melt-downs, overeating, challenging behavior, and diarrhea that will result are truly not worth it. Taking the forethought to either keep these foods away from our children or - better yet - not have them around at all will make the whole holiday experience a million times easier.

Surprising Your Child
Sometimes, we can be so busy planning and getting ready for a holiday outing (e.g. going to grandma's) or project (e.g. putting up the Christmas tree) that we forget to notify a crucial participant: our special child. Although our intention is not to surprise our children, this is often what happens when we depart on an outing or embark on a project without explaining everything that will happen to our children in advance. Even for our non-verbal children, explaining ahead of time what will happen and why it will be fun for them will go a long way toward minimizing tantrums and maximizing cooperation.

Leaving No Way Out
It is very common to go to someone else's house for a holiday celebration. Usually, we just take our child and hope for the best, thinking that we don't have a lot of control over the matter. But we do! We can designate, in advance, a calm room or space where our child can go to decompress once they begin to be overwhelmed by all of the commotion and sensory input that comprise most celebrations. Every so often, it can really help to take our child to this room and spend some time alone with him or her.

Focusing On Stopping Challenging Behaviors
Most of us dread our children behaving in a challenging way. We worry about it, we look for it, and we try to stop it as soon as it happens. Ironically, this puts all the focus on what we DON'T want from our children. If we don't want our children to hit, for instance, focusing on "not hitting" can actually create more hitting. Instead, we can celebrate our children every time they do something we do want. If we have a child who sometimes hits, it can make a huge difference to actively look for any time our child is at all gentle - and then cheer wildly!

Giving An Over-Stimulating Present
Sure, we derive great joy from the experience of giving presents for our children. But when it comes to our special children, we want to be especially cognizant of what type of present we give. If we give a present with flashing lights and loud beeps, we're asking for challenging behavior later. Let's take some time to sincerely consider whether the gift we are about to give is going to contribute to the over-stimulation of our children with sensitive sensory systems.

Leaving Our Children Out Of The Giving Process
We always consider our special child when purchasing gifts. But do we think of our special child as a potential giver of gifts? Thinking of other people - what they want, what we could do for them - is an essential element of the socialization that we want our children to learn. The holidays provide the perfect opportunity for this! We can schedule sessions with our special child in advance where we help them create something for one or more of the people in his or her life. (These gifts and activities can range from very simple to more complex, depending on our particular child's level of development.) Then, on the day of gift-giving, we can invite our special child to present (as best he or she can) any gifts that he or she has made.

Expecting Your Family To "Get It"
Many of us may, at times, feel frustrated with members of our extended family for not being more understanding and responsive when it comes to our special child. But, remember, if our extended family members don't live with our child, they won't "get it." When taking our special children on visits to extended family for holiday visits, we can send e-mails to them explaining what they can do to make the visit comfortable for us and our child. We can take this opportunity to explain why sudden loud noises might be problematic, or tell everyone the answer our child likes to hear when he or she asks the same question over and over. This way, we stack the deck in our child's favor.

Thinking That Activities Need To Happen Outside Your Home
We know that children on the Autism Spectrum will always do better when they are not over-stimulated by the many sights, sounds, smells, and unpredictable events of the outside world. So, we can create experiences in our homes that we would normally go out for. For instance, instead of going to an evening parade with a festival of lights, we can put Christmas or Hanukkah lights around the house, turn off all the lights, and play holiday music at a gentle volume. Some of us might be concerned about depriving our children of fun holiday experiences, but keep in mind that when our children can't digest the experience, they're not having the fun experience we want for them, anyway. That's why, if we can create a digestible version of the outing at home, our children can really take in and enjoy the experience. Thus, we are actually giving our children more, not less.

Seeing the Wrapping Instead of the Gift
So often, we get caught up in the trappings of the holidays - the tree, the presents, the outings that have to go exactly as planned. It's okay to arrange fun things, but remember that these are only trimmings. They aren't the gift, they're just the wrapping. The gift is our special child. The gift is sharing sweetness with the people we love. Instead of using the holidays as a planning fest, we can use it to see the beauty in our child's uniqueness, to celebrate what our child can do, and to feel and encourage compassion for our child's very different way of experiencing the world.

Aug 19

Last Week...

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Jakob, my mom and I travelled to Sheffield, Massachusetts last week to go to the Autism Treatment Center of America. I've been waiting 4 years to take him to the Son-Rise Intensive and it was absolutely worth the wait. So many amazing things happened. The staff out there is incredible, I couldn't love them more. So inspiring. Can't wait to share details!!!

Jul 05

July 5, 2011

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"Do not go where the path may lead. Go instead where there is no path and leave a trail."
- Ralph Waldo Emerson

Jun 22

Awesome Speech

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I love this kid...an amazing graduation speech from a student with Asperger's. What he accomplishes here is what so many of us wish for our kids. Be warned...you may cry, I sure did.

May 24

Too Flipping Cute...Seriously...

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One more reason for me to love Justin Bieber...

Apr 12

April 12, 2011...Just Processing

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I’m in a phase. I’m noticing a pattern and just trying to make peace with it. All is always well, right? Right.

In the past month, I have attended 8 full days of classes. Pretty intense personal growth classes that to an extent have me reeling. Well, maybe just a little bit of reeling but a whole lot of processing. There are times when I think my head is going to explode as I try to take the stuff I learned and apply it to real life situations. And I seem to have quite a few real life situations. Don’t we all. Isn’t it funny how the older we get, the more life situations we acquire? I sure do miss junior high sometimes…the simple days.

Of course, if I didn’t have Jakob, I wouldn’t have ever started on the path of personal growth. Another reason why I am so lucky to have him. I do cuss him a little, to be honest, when I go through these processing phases, they hurt. Literally. My head hurts.

I spent a week at the Option Institute/Autism Treatment Center of America taking a relationship course called “Never Settle Singles” and a long weekend here in town at the School of Conscious Living studying the Enneagram and Spiral Dynamics. I so love being a student again, I really do. But this is a totally different kind of learning. It’s so much fun to pick myself apart in every which way, let people take a few shots at me and learn exactly what I can and cannot handle. Then figure out how I’m gonna handle the stuff I struggle with. Fascinating. Way better than a week on the beach with a hot cabana boy bringing me frozen mudslides. That’s a totally different kind of personal growth.

A few years ago, I never would have understood the connection between all this stuff and Jakob. I wouldn’t have been able to see that the deeper understanding of self that I have, the deeper understanding of Jakob I’ll have. And if I can take a good hard look at the spiritual side of things, I can find an inner peace that reassures me in times of uncertainty that everything is as exactly it is meant to be. The more I can dig, the more I can grasp, the deeper I can feel it, the better we will both be.

So right now, I’m processing. And integrating. And drinking a glass of wine. White. And when this round of processing is through, I’ll read the new Twilight book and get back to ya…

Mar 15

May 21...See You at Coney Island...

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Thank you, Dennis Schoner for the amazing video...

Mar 09

March 8, 2011...He's John Denver

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See the resemblence???

I think Jakob is John Denver reincarnated. I mean it, I’m totally serious. I have proof.

Jakob never (well, very rarely) lets me sing. I’m the kind of person that will bust into song at any given moment for no particular reason. Some songs are even originals that I have composed myself.

I will readily admit that I do not sing well…but I sing loud and with a lot of passion. It comes from the heart and I do have the music in me. What I lack in skill, I make up for in charisma and stage presence.

I will have the urge and the music will just begin to pour outa me. Sometimes the song of choice will have been inspired by something that has just happened or it could just come out of nowhere. Some things just can’t be explained. And 99% of the time Jakob will cut me off within the first two bars by yelling, “no singing”. Inevitably, if anyone else is around to witness this, they thank him for making me stop.

Tonight was different.

I’m not sure what inspired me but I burst into “Thank God I’m a Country Boy”. A classic. My former opening number at karaoke. I know all the words…no screen needed. I was knee-slapping and clapping and really entertaining myself when Jakob walked into the room. He took my hands and wanted me to clap with him. He was looking me in the eye and smiling. He let me sing the whole song.

I whipped out my iphone where I, of course, have many of John Denver’s greatest hits and I pulled up the song and hit play.

He never lets me play music on my iphone (except “Who Let the Dogs Out” occasionally). He grabbed the phone out of my hands, held it firmly and stared at the picture of John as the musical masterpiece played. He was engrossed. I’ve never seen him like this. It was as if he were being reintroduced to an old friend. He listened to “Take Me Home Country Roads” and “Grandma’s Feather Bed” with the same enthusiasm.

It would explain so much. Even his hair. I believe in reincarnation. Totally. I gave birth to the spirit of John Denver. Wow. I’m so much cooler than I ever thought I was. Words cannot express how excited I am right now.

Gotta go…we’re gonna jam a little “Rocky Mountain High” and “Sunshine on My Shoulders”…WOO HOO!!

Mar 03

March 2, 2011...Grandma is Coming...

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I’m tired and it hurts. Don’t wanna dwell on those two facts but I feel they are worth mentioning. Briefly. I have a thoracic strain and I’ve had houseguests for the last 10 days. I love them very much, they were very helpful. I’m tired.

And I keep looking at my new tattoo…which I love but today I’m questioning where I positioned it. Maybe I should have moved it over a little. Oh well. Not a lot I can do about that now.

Jakob has had an exciting couple weeks. His Grandma was here and he sure does dig her. He was counting down the days until she got here. I have to say, I was very impressed. Without prompting or helping with the numbers, he kept a countdown going for when Grandma would arrive. He woke up one morning and announced “Grandma is coming in 2 days”. He said that before he ordered me to turn on the bathroom lights so I knew he was serious.

He’s so funny with her. He insists on sleeping at “Grandma’s house” which is the guest bedroom. Poor Grandma doesn’t get too much rest when she’s here. He sleeps through the night but he digs his toes into her thighs and he sleeps sideways. No big deal in a king-size bed. She’s dealing with a queen…different story.

I have to laugh at the little changes in his bedtime routine dialogue when she’s here. When he sleeps with me, we do the nightly affirmation, “I am whole, perfect, strong, powerful, harmonious, loving and happy”. I say “I love you” and he says, “I love you more”. Then I say, “see you tomorrow” and he always responds very impatiently, “no see you tomorrow, see you NOW”. I always smile and say, “ok, see you now”. It’s just so amusing how emphatic he is about seeing me NOW.

It’s a different story when Grandma is here. I say, “see you tomorrow” and he says, “see you tomorrow,” and he kicks me out of the room. Game over.

It tickles me on so many levels. I worried so long and so hard that he’s never connect with anyone, that he wouldn’t form relationships. I’m here every day and I had to really work at it. Grandma comes to town every 3-8 weeks and he can’t wait. He misses her, he wants her around, he gets excited to see her, he gets sad when she leaves. Not only is that just awesome, but it’s also proof that he can do it. He’s capable of connecting. Relationships with other people are possible for him. He’s just picky about who he hangs with. He has good taste, I have to admit.

The morning he woke up and Grandma was gone, he said with a sad voice, “no bye-bye Grandma”. I took him to the calendar and we counted how many days it would be until Grandma comes back. He’s done beautifully with this countdown as well. As of today, “Grandma is coming in 20 days”. So flipping cute.

Feb 22

February 21, 2011...Go Fix It

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472 lights on, all at once. Not a light in the house left off. I’ve discussed this before and it continues to be a sticking point around here. Between my electric bill and light bulbs, it’s amazing I can still feed him. And it seems that when one light goes out, they all go out. I need to have a stash of bulbs on hand at all times…but sometimes I don’t. Like Saturday.

It was late afternoon when I realized the big light in Jakob’s room was burnt out. It was about 2 seconds later when I also realized I was out of light bulbs. I had used the last one the day before in the downstairs bathroom. Crap. Breathe.

This is where it gets tricky sometimes. I immediately think…”here we go, he’s gonna have a fit, he’s gonna be upset, there will be tears, there will be drama…and I am sooo not in the mood”.

Then I say…”really, how do I know that? It’s not fair to assume just because the last 217 times a light has burnt out and I didn’t have a replacement he went a little nuts doesn’t mean he will this time. This time may be different”.

And then I follow up with…”if I’m cool about it, I will model what I want him to learn…that it’s no big deal. So what if a light bulb burns out and we don’t have any replacements. The world is not coming to an end. We will survive and be just fine. It’s cool. Yup, life will go on. All is well and I got this”.

Since he was playing in my room at the time of the big burnout, I had some time to really get into the most effective state of mind for the big adventure that may or may not occur.

It was 7:58 and he walked down the hall to use the bathroom when he saw it. It was immediate. “Big light on, Big Light On, BIG LIGHT ON!”.

I was prepared…”Big light is burnt ooouuutt!” And I flipped the switch to demonstrate. His response to that was an order. “Mom, go fix it”.

So the banter began…”buddy, we’re all out of light bulbs. I will have to go to the store tomorrow and get some.”

“Mom, go fix it.” Tears welled up in his eyes and his little mouth turned down.

“I can’t go fix it, we’re out of bulbs. It’s ok. Mom will go to the store tomorrow and we’ll fix it.”

“Mom, go fix it right now. No store tomorrow. Store right now.”

“I can’t go to the store right now. I’ll go tomorrow.”

Full blown tears at this point. “Mom go fix it”.

“How about this…we’ll go to Target tomorrow at 9:00 and we’ll get light bulbs…”

“No Target at 9:00……..a ride to Target at 8:58.”

“Ok, a ride to Target at 8:58”.

I saw his wheels turning as he processed all that happened and he composed himself. The sniffles slowed down, he wiped his eyes and said, “No 8:58. A ride to Target at 8:45.”

I just laughed and agreed.

For the remainder of the evening, there was an occasional “big light on” and “Mom, go fix it” but he let it go when I would remind him that we were going to Target at 8:45. (Which I have no doubt that he remembered. He was just checking to see if I’d cave and go immediately.)

Everything was going smoothly the next morning as I wondered if he’d remember our deal. He didn’t even pay attention to the big light out in his room and I almost thought that I was gonna get out of this trip to Target. But the universe had other plans for me. I went to turn on the green light in the garden room and poof. The light was burnt out. He noticed immediately and I gave him the news. He looked at the clock and said, “a ride to Target at 8:45”.

He was so funny. He sat on the couch and watched the clock. He drank his juice and he ate some cereal and never took his eyes off the time for more than a couple seconds. And at 8:45, he jumped up and put on his shoes.

We had a nice chat on the way to Target. We made a list of a few things we needed to pick up. Of course on the list was a specific book for him. He’s in the process of collecting two of each one of this particular series of workbooks. He was ready to collect his second “BrainQuest Woorkbook 1 Book” along with the light bulbs and some sweet tea for Aunt Sandy.

Something truly amazing happened when we arrived at the BrainQuest Workbooks…they didn’t have any of the one he wanted and he remained completely and totally calm. No yelling, no crying or stomping his feet. Not even a little wimper. It was impressive. I stood there so proud and I gave him a couple options…pick out a different book or we could go to Meijer to see if they had any.

He took a minute to think about it. Then he looked me in the eye and said “a ride to Meijer”. Then we turned around, went back the way we came and walked out of Target without any light bulbs. That was huge…to leave without what we came for, to not take our usual route through the store, to not walk around and point out every light that was burnt out or look in the mirror in the young men’s department and say “big Jakob is very, very, very, very, very, very smart”, and to totally bypass all toys. That was a first and it was very cool.

Everything went equally as smooth at Meijer. We found his book, he helped me pick out light bulbs and we got Sandy’s sweet tea. Then he chose aisle 30 for us to check-out.

On the ride home from Meijer, as I was basking in the glory of all that had transpired, I couldn’t help but think of my initial reaction when I saw that first light had burnt out and I realized we were out of bulbs. I had to shake my head and laugh just a little. It does seem that things always work out for us. One way or another, everything turns out ok. And sometimes, things unexpectedly turn out to be amazing.

Trust and faith that we are always right where we’re supposed to be and that all is well.

Something to keep in mind.

In every moment.

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